Leicester, Leicestershire and Rutland's Living Well with Dementia Strategy 2019-2022

Closed 22 Jun 2018

Opened 19 Apr 2018

Feedback updated 15 Jan 2019

We asked

We asked for views on the draft Leicester, Leicestershire and Rutland Living well with Dementia Strategy 2019-2022 which seeks to improve services and support for people living with dementia through the work that is undertaken by the NHS, social care and voluntary sector organisations across Leicester, Leicestershire and Rutland.

You said

From Leicester, 116 people responded to the online consultation representing 52% of all respondents across Leicester, Leicestershire and Rutland. Below are the figures from Leicester respondents:

74% of the respondents agreed with the actions relating to the Preventing Well section of the strategy.

74% of the respondents agreed with the actions relating to the Diagnosing Well section of the strategy.

66% of the respondents agreed with the actions relating to the Supporting Well section of the strategy.

77% of the respondents agreed with the actions relating to the Living Well section of the strategy.

We did

As the majority of respondents supported the strategy, no significant changes were made to the strategy itself. Minor changes to clarify some of the language used have been made and an additional action under the Dying Well guiding principle has been added. This action is:

  • Ensure that people living with dementia are aware of Advanced Care Planning.  

The consultation feedback was presented to Adult Social Care Scrutiny Commission on 10 October 2018. As a result, the strategy was presented to the city mayor and endorsed on 8 November 2018. Leicester City Council officers will now start to work on the underpinning implementation plan for the strategy.


The key aim of the local Dementia Programme Board is to support people affected by dementia to live well in Leicester, Leicestershire and Rutland.

The board has drafted a new strategy showing the actions we intend to take. It reflects the national strategic direction and is informed by what people have told us about their experiences either as a person living with dementia or as a carer.

We aim to create a health and social care system that works together so that every person with dementia, their carers and families have access to and receive compassionate care and support not only before diagnosis but after diagnosis and through to end of life.

We also aim to improve access to diagnosis and support services for patients and service users from Black, Asian, minority ethnic and hard to reach groups.

Why your views matter

We would like to know your views on the actions listed in the strategy.

The strategy is for everyone affected by dementia – people with a diagnosis of dementia, their families and carers, and people and organisations who work to support them.

When the consultation closes in June the Dementia Programme Board will update the strategy taking into account views that have been expressed. Each board member will support the strategy by developing their own action plan, based around their offer for people affected by dementia and their carers.

What happens next

Once the consultation period has ended, the responses will be analysed. The analysis may inform further changes to the strategy, after which it will be finalised and published.

Please note: Your responses to the main part of the survey may be released to the general public in full under the Freedom of Information Act 2000. Responses to the 'About you' section of the questionnaire will be held securely and will not be subject to release under Freedom of Information legislation, nor passed to any third party.


  • All Areas


  • Working-age people
  • Older people
  • All residents
  • Carers
  • Full-time and part-time workers
  • Disabled people
  • Gypsy and Traveller community
  • All households
  • Carers' network
  • Voluntary organisations
  • Community organisations
  • Self-help groups
  • User groups
  • Health services
  • NHS
  • Service providers
  • Partner agencies
  • SCE staff
  • Local Authority staff within Leicester, Leicestershire and Rutland
  • Service users
  • Care home residents and their next of kin


  • Adult social care and safeguarding
  • Public health
  • Adult social care